‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia

ResearchComponents.InformationTable.Publication.Authors Jacoba Huizenga, Sascha Bolt, Jean-Pierre Wilken, Nienke Bleijenberg, John Keady, Tine van Regenmortel
ResearchComponents.InformationTable.Publication.PublishedIn Dementia
ResearchComponents.InformationTable.Publication.PublicationDate 2025
ResearchComponents.InformationTable.Publication.Lectorates Participation, Care and Support
ResearchComponents.InformationTable.Publication.PublicationType Article

ResearchComponents.PublicationContent.Header

In the Netherlands, where this study was conducted, there are around 800,000 family carers of people with dementia. Research into the needs and priorities of people with dementia and their family carers is crucial for developing tailored care and meaningful support. However, current research lacks attention to the everyday life experiences of caring for someone with dementia at home. Therefore, the research question this study aimed to address was: how do family carers of people with dementia living at home approach and experience their everyday life in a caring context?

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researchcomponents.publicationcontent.personslist.publicationauthors

  • Jacoba Huizinga | PhD Candidate| Participation Care and Support
    Jacoba Huizenga
    • PhD candidate
    • researchcomponents.publicationcontent.authorlectoratelabel: Participation, Care and Support, Proactive care for older people living at home
  • Jean-Pierre Wilken
    • Professor
    • researchcomponents.publicationcontent.authorlectoratelabelsingle: Participation, Care and Support
  • Nienke Bleijenberg PhD | Professor | Research group Chronic Diseases
    Nienke Bleijenberg
    • Professor
    • researchcomponents.publicationcontent.authorlectoratelabelsingle: Proactive care for older people living at home
ResearchComponents.DetailedInformation.Language English
ResearchComponents.DetailedInformation.PublishedIn Dementia
ResearchComponents.DetailedInformation.Keywords everyday life, family carers, psychosocial, dementia, neighbourhood, citizenship
ResearchComponents.DetailedInformation.DigitalObjectIdentifier 10.1177/14713012251368682
ResearchComponents.DetailedInformation.PageRange 1-19

Jacoba Huizenga

Jacoba Huizinga | PhD Candidate| Participation Care and Support

Jacoba Huizenga

  • PhD candidate
  • ResearchComponents.ResearcherContactBlock.LectoratesParticipation, Care and Support, Proactive care for older people living at home