How do I live with dementia?

ResearchComponents.InformationTable.Publication.Authors Jacoba Huizenga, Herma Tigchelaar, Edwin Doorn, Mike Geurtsen, Richard den Hartoog, Anita Linskens, Wim van Ogtrop, Gerda van Tongerloo, Frank Zwertbroek
ResearchComponents.InformationTable.Publication.PublicationDate 2025
ResearchComponents.InformationTable.Publication.Lectorates Participation, Care and Support
ResearchComponents.InformationTable.Publication.PublicationType Book

ResearchComponents.PublicationContent.Header

A diagnosis of dementia can change your life profoundly. You need stories, experiences, and tips from others β€” from people who truly understand what it means to live with dementia, every single day, in order to find your own way through. This book was created with care and straight from the heart. It brings together the experiences, insights, and life wisdom shared by those who know dementia from the inside out. The authors show how everything changes β€” your daily activities, your relationships, your sense of self, and how others see you. Jacoba Huizenga explored these changes through research done with people who have dementia. She was the first in the Netherlands to bring together a group of people with dementia as co-researchers. They call themselves Brain Power. Brain Power took the initiative to create this book, to make the findings from the research project Everyday Life with Dementia accessible to a wider audience β€” especially to people living with dementia, as well as their partners, families, friends, and close communities. It’s also meant for professionals like case managers, general practitioners, and others in care and support roles.

researchcomponents.publicationcontent.personslist.publicationauthors

  • Jacoba Huizinga | PhD Candidate| Participation Care and Support
    Jacoba Huizenga
    • PhD candidate
    • researchcomponents.publicationcontent.authorlectoratelabel: Participation, Care and Support, Proactive care for older people living at home
ResearchComponents.DetailedInformation.Language English
ResearchComponents.DetailedInformation.Keywords dementia, life stories, experiences

Jacoba Huizenga

Jacoba Huizinga | PhD Candidate| Participation Care and Support

Jacoba Huizenga

  • PhD candidate
  • ResearchComponents.ResearcherContactBlock.LectoratesParticipation, Care and Support, Proactive care for older people living at home